Across the UK there is a fantastic youth social action network, this network can be in a variety of forms but I have personally experienced this in a number of different settings.
I have been a member of the NHS England Youth Forum which is an awesome network for making positive change from the point of view of young people who let’s face it are going to be using the NHS for years to come.
The NHS England Youth Forum has been able to positively make a difference in a number of different ways over the 12 to 18 months, through 3 campaigns ‘Share your NHS Story’; ‘Peer Support’ & ‘Educating the Educators’.
For myself, the ‘Share your NHS Story’ campaign has had the most impact within my local area because I have been able to influence positive change by encouraging young people to speak out about there NHS Story if they have one & have felt confident enough to share it with there peer group.
I have also been able to see a positive change in the way that young people are listened to by key decision makers not just within my home town of Hereford but also now on a national level through my work with the NHS England Youth Forum & Youth Advisory Panel at the Sport & Recreation Alliance.
When I launched The Young Person’s Network in 2017 my vision was to enable all children & young people in Herefordshire to be heard if they are aged between 11-18 and have a disability or additional need. 2 years on I think it is safe to say that decision makers in my county are effectively listening to marginalised young people.
I know this is happening is a positive way because my network managed to get 2 pavements lowered in a rural area of the county for a young person who is a wheelchair user and wanted to go out independently with friends.
She wasn’t able to before this change because of the lack of dropped kerbs in her local town so I was contacted about this issue and then liaised with key decision makers to influence this much needed change.
More recently I have worked with a group of young people to highlight the lack of dropped kerbs for those who are either in wheelchairs or have mobility issues. After months of high profiled campaigning, we have now had such an impact on key decision makers that more dropped kerbs are going to be added to roads where they are needed in Herefordshire.
To conclude: without young people speaking out and being heard by people in power across a number of organisations locally, regionally & nationally we wouldn’t have made a positive impact on the lives of generations to come, this is why since getting involved with the NHS England Youth Forum & SRA Youth Advisory Panel I have developed a serious passion for youth social action in the UK. Don’t be afraid to speak out & be heard.
In October 2018 the British Youth Council worked with the NHS to obtain the thoughts and opinions of young people. Consultations from Royal College of Paediatrics and Child Health, Association for Young People’s Health and the NHS Youth Forum gathered the views of over 300 young people, including those who are seldom heard.
During these consultations, young people said that they wanted:
- Improvements to mental health support
- Children and young people friendly services
- Skills to manage their own health
- Improved transition
- Their voice to be listened to
On the 7th January the NHS launched it’s Long Term Plan. This lays out a blueprint for NHS services across the country for the next 10 years. In the plan, the NHS Youth Forum are delighted to see that children and young people’s services have been recognised as priority areas for the NHS and there are significant developments in services from neonatal to young adult (0-25).
“Children and young people represent a third of our country. Their health and wellbeing will determine our future. Recent years have seen improvements in certain services which have been singled out for action, but a mixed picture overall. Now, over the next five and ten years we need to build on that and broaden our focus”.
– NHS Long Term Plan 2019
Here are some of the key areas we’re particularly pleased to see within this plan:
Increased funding for children and young people’s mental health services
Over the next 5 years, the NHS are investing in mental health services for children and young people, including eating disorder services and embedded support in schools and colleges. They will also be developing a new approach to service delivery by extending current service models for 0-25 year olds.
Beth, a member of the NHS Youth Forum responded: “[The Plan] shows a good insight into the requirements of mental health services for children particularly with providing good long-term support, school-based services and follow up support for children who present with a mental health crisis. From the point of view of somebody working in children’s nursing this long term input is desperately needed as many children and young people present to A&E or general paediatric wards multiple times in crisis and it is an inappropriate environment for distressed and vulnerable CYPs.”
Learning disability and autism
Beth, a member of the NHS Youth Forum also said: “There are currently incredible pressures facing CAMHS services and services for children with learning disabilities and/or autism within the NHS. It is very welcome to see a particular focus on these groups of vulnerable young people. People with learning disabilities/autism face greater health inequalities and a shortened life expectancy and so to improve services such as health screening and community care for CYPs will lead to long-term sustainable change for these CYPs as they become adults, hopefully reducing inequalities in later life.”
Children and young people with cancer
Tom, a member of the NHS Youth Forum commented “The plan highlights a change in the way cancer treatment will be done with all children to allow for greater personalised care and a more comprehensive diagnosis, but also being able to have CAR-T cancer therapy in the UK without having to travel to Europe or America. This allows for children and young people in this especially vulnerable state to be treated effectively in an environment they feel safe in.” – Tom, NHS Youth Forum member
Redesigning children and young people’s services
In the new plan, the NHS has committed to creating models of care that are age appropriate, closer to home and bring together physical and mental health services, as well as improved quality of care for those with long term conditions. They have also pledged to create a Children and Young People’s Transformation Programme which we’re excited to see develop.
“A key message from stakeholders during the development of the Long Term Plan was that the needs of children are diverse, complex and need a higher profile at a national level. We will therefore create a Children and Young People’s Transformation Programme which will, in conjunction with the Maternity Transformation Programme, oversee the delivery of the children and young people’s commitments in this Plan” – NHS Long Term Plan
By 2028, the NHS aim to improve young people’s experiences of transition by developing services for young people that offer a more holistic approach; “person-centred and age appropriate care for mental and physical health needs, rather than an arbitrary transition to adult services based on age not need.”3.47, NHS Long Term Plan
Jacob, a member of the NHS Youth Forum said: “I absolutely love the idea of moving to “young people services”(0-25). It helps with transition and allows for more appropriate patient centred care for that individual young person – treatment location could then be based on their needs rather than their age. This is something I’m glad is in there as we want to make something like this at my trust.”
Development of Youth Volunteering
We are delighted to see that the NHS is continuing to invest in volunteering, particularly for young people. NHS organisations will be encouraged to give greater access for younger volunteers through programmes such as #iwill and an increased focus on programmes in deprived areas, and for those with mental health issues, learning disabilities and autism.
Final thoughts
The plan certainly acknowledges the challenges facing the health of children and young people and overall the NHS Youth Forum feels positive about the NHS’s plan for the future. We are, however, keen to ensure that the voices of children and young people are embedded within further service development.
Amy F, who was formerly part of the NHS Youth Forum said: “There are many areas to improve and develop and therefore to make these changes meaningful, it would be positive to see ongoing stakeholder contribution. For example, many service users have a wealth of knowledge and experiences that can contribute to such a positive change and highlight the areas of good practice alongside those areas that could be changed. It would be exciting to see all local services engaging with service users (including children and young people) and these conversations to contribute to the commissioning of our future health service.”
Amy H, a member of the NHS Youth Forum said: “The plan inspires a structured, cultural and sociological approach of change to health and social care which creates an element of hope that we are on the right path in tackling some major fundamental health issues. It also enables a drive in creating a healthy society and a sustainable NHS that can be a beacon of high-quality care, and demonstrate what compassionate care really means across the world”